Your PBS for the greater Los Angeles area

ALS Second Opinion TV Live Twitter Event

Second Opinion hosted a live taping in New York on Thursday, June 14, 2012 and PBS stations around the country held special viewings were participants sent in questions to the panel of Second Opinion via Twitter by using the #AskTVDr.

PBS SoCaL held one of those viewings with invited guests from the local ALS community to watch the taping and send in their questions. Thank you to all that came to PBS SoCaL to be part of this important discussion. We hope that we can continue hosting events just like this one and share our commitment to fostering meaningful discussions in the community in the future.

To learn more about ALS and how you can support the ALS community please visit the ALS Association website and if you or someone you know suffers from ALS and would like to share your story or find others who you would like to connect with visit patientslikeme.com

We created a Storify to chronicle some of the highlights from the social media stream:

ALS Second Opinion TV Live Event

Second Opinion hosted a live taped show in New York on Thursday, June 14, 2012 and was accepting questions on Twitter by using the #AskTVDr. PBS SoCaL held a live twitter event with invited guests to watch the taping and send in their questions.

Storified by KOCE · Thu, Jun 14 2012 19:09:49

Thanks 2 all participants, panelists, Gary, Joy, Deb Guntrum, NP @URMCDiscoveries for GREAT ALS talk #AskTVDr http://bit.ly/J3aYLnSecond Opinion
Lou Gehrig’s Disease affects 5 out of every 100,000 people. Watch LIVE NOW @SecondOpinionTV #AskTVDr http://ht.ly/bz6uoKQED
ALS affects brain nerve cells that control muscle movement #AskTVDr @SecondOpinionTV Getting Ready WATCH http://bit.ly/J3aYLnSecond Opinion
Go to http://clinicaltrials.gov for info on all ALS trials in US #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion
FDA TRIAL w/ stem cells now going on @Emory University, GA #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion
No cure for ALS, but tech/resources contribute to better lives #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion
#AskTVDr Gary's bucket list includes skydiving - DONE! http://pic.twitter.com/JpJov5v7Jeanne Fisher
Gary's bucket list -- deep sea fishing, sky diving-- DONE IT !! #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion
From Gary: http://Patientslikeme.com helpful in finding support from patients with same conditions #asktvdr #AskTVDrMarion French
If people offer to help, say YES! If you keep saying no, they will stop offering. #AskTVDr @SecondOpinionTVSecond Opinion
Gary spot on about the importance of peer-to-peer assistance and communication! #asktvdrALS Advocacy Topics
@ alsagoldenwest #AskTVDr Gary Temoyan is sharing his personal story right now. Your ALS stories help inspire... http://fb.me/1L0JHywZgALSA GoldenWest
78% of adults needing long-term #ALS care rely on family/friends as sole support #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion
Dr Papa says People with neurological issues like ALS have more serious prob w/ depression #AskTVDr @SecondOpinionTVSecond Opinion
@jsbulin Dr Feldman says it is not known if radiation exposure contributes to ALS #AskTVDrSecond Opinion
On the topic of environmental factors, does anyone on the panel think radiation exposure is a possibility? #asktvdrJasmine Bulin
@jefisher100 Dr Feldman says there may be environmental factors, example of cases in military personnel stationed together #AskTVDrSecond Opinion
#AskTVDr Do we know how sporadic ALS develops if it's not genetic? How does one get it if it's not hereditary? #AskTVDrJeanne Fisher
Dr. says only 10% ALS is genetic. More common to not run in family. #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion
Dr. Feldman @UMHealthSystem No one single test to diagnose ALS #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion
Tough to diagnosis ALS as symptoms mimic other medical conditions #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion
@pbssocal Slower ALS onset when starting in limbs; quicker when starting in bulbar or mouth #AskTVDr http://bit.ly/OC6KxmSecond Opinion
#AskTVDr question from Dean Z: Is there any new research on the onset speed of ALS? Is there a slower onset in the upper or lower body?KOCE PBS SoCaL
@jsbulin Dr. Feldman wrote 220 articles 2 books PI 4 NIH grants, 5 clinical trials on understand, treat neuro disorder/ ALS #AskTVDrSecond Opinion
@jsbulin Info on Dr. Feldman Research at http://ow.ly/bAn2D #AskTVDr @SecondOpinionTV http://bit.ly/OC6KxmSecond Opinion
We are interested in hearing more about Dr. Feldman's research and her thoughts on a cure #AskTVDrJasmine Bulin
Members of @alsagoldenwest, alsa san diego, and alsa oc @SecondOpinionTV #AskTVDr about #ALS http://fb.me/1y7hBLNXvALSA GoldenWest
Joy is ready 2 answer ?s at #AskTVDr @secondopiniontv http://pic.twitter.com/LZbYsLhxJill Rehak Kemp
Welcome Deb Guntrum, NP @URMCDiscoveries Now answer ?s at #AskTVDr @SecondOpinionTV Watch: http://bit.ly/J3aYLn http://ow.ly/i/HghLSecond Opinion
Getting ready to watch the ALS episode of #Second Opinion's upcoming season being taped. So interested in this topic! Might even #asktvdrIrene Fink
Studio is Ready! See nat't TV show in production; #AskTVDr ?s #ALS @SecondOpinionTV http://bit.ly/OC6Kxm @healthnewsnow @alsontarioSecond Opinion
Watch live video of @SecondOpinionTV on Lou Gehrig’s Disease you can #AskTVDr questions starting at 11 AM PST http://bit.ly/J3aYLnVince C