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PBS News Hour

A Brief But Spectacular take on revolutionizing research

Sharon Fontaine Terry is the president and CEO of Genetic Alliance, a nonprofit that advocates for advancing genomic research. While she is now heavily involved in the world of genetics, she was in fact the first non-researcher and lay-person to discover a gene, which began when her children were diagnosed with a rare disease. She shares her Brief But Spectacular take on revolutionizing research.
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September 3, 2025 - PBS News Hour full episode
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